So.......
Since the last time that I posted anything about our life. It has changed alot but then again not much has changed.
Brayden is still of dialysis 9 hours a day, 250cc fills with 180 last fills. He is still the funniest kid on the planet. He still throws up a ton and goes back and forth from eating and not eating.
A few weeks ago he learned to say Mama and Baba and then he had surgery and promptly forgot how to say mama and baba but learned to say Dada and now that's all that I hear! Dadadadadadadadadadadadadadadadada!!!!!! He is the smartest kid on earth! Im serious, I have the smartest 8 month old ever! ( I know everybody says that LOL) He watches what Kyle does and tries to copy it, he waves bye bye, he nods yes and no, when you say Wiggle-wiggle-wiggle he wiggles all over. He is sitting up on his own and starting to put some weight on his hands and knees. Physical therapy is doing amazing things with him!
On the other hand, Our dialysis friends havent been doing so hot lately.
Brandon, Buddy's "twin", has been in and out of the hospital a whole bunch lately. He got a peritonitis ( infection in his bellly from dialysis) and it turned out to be worse than they thought. He had to go onto Hemodialysis ( blood dialysis). He had some complications with that and ended up with an infection in the IV lines that they used for his Hemo. Yesterday they put in the Peritoneal dialysis cath back in and in a week or so they are going back to PD instead of Hemo. Because of his frequent infections, Dr. Malagon wants Brandon to have his transplant much sooner than expected. He is 8kg ( 18lbs) now and the surgeons would prefer him to be 10 kg (20lb). Cincinnati Children's has agreed to look at him soon and hopefully will start the process in the next week or so.
His momma is one of my closest friends and she has just been soooooo stressed out. I feel like Brandon is a part of me too. I just cant imagine how they feel.
Summer, who you guys have never heard about, is a 4 month old lil sweetheart. She is new to our dialysis clinic. She was born on time but had to have both of her kidneys taken out because of a genetic disorder that caused tumors on them. He has been on both the Hemo and PD dialysis. Last week, she "crashed". Her oxygen was very low and she had to go back on the ventilator because they found a hole in her diaphragm from the PD ( this is a fairly common complication). She was doing better then crashed again. They think she might have an infection or the flu. Her momma is taking all of this like a champ. I guess we dont really have a choice to take it well or not. We are all in survival mode.
I am thankful that I have a baby that is as healthy as he can be. A happy baby and a baby that is at home with me. When I get on my pitty party for myself, I think of all the other amazing parents that are going thru more than I am at the moment. Please pray for all of our babies!
I will try not to be such a bad blogger.
No comments:
Post a Comment