I am crying because I am a blubbering idiot! My baby boy is laying on the couch taking a nap, my wonderful husband is watching tv and I am crying. Why? Because I just read that one of our Internet kidney friends got a kidney. Some one gave him a new life of feeling better.
I just can help but IMPATIENTLY wait. We now have a plan and tentative dates. I have patiently waited this whole time, now it is my turn to really worry.
Jan 7th Kyle and Buddy both go to the doctor. Kyle goes for testing and crossmatching and Buddy for the usual. I worry because Brayden has 53 antibodies in his blood. This means that he has a pretty good chance of having a positive crossmatch with Kyle's blood and that would mean that he couldnt have Kyle's kidney. If that happens, then we will go to me but what if I am not healthy enough and they wont take my kidney? The what ifs are killing me!
Jan 18th ( if all goes well with the crossmatch and Kyle's testing) we will take out Brayden's native kidneys and augment his bladder. This surgery scares me MUCH more than the actually transplant does. He will not have any kidneys and there for will not have any way of fluid elimination except by dialysis. This puts him at a much higher risk of fluid overload and other complications. It can be done but being the nurse that I am, I know all of the issues that go along with all of this. Sometimes I wish that I just didnt know what could go wrong. Ignorance is bliss! But then again, we will be able to spot issues much faster since we know what to look for.
I will have to put a catheter into his bladder every night and fill his bladder up with saline so that the bladder will not "lock down" while it is healing. He will have a "dry" bladder since no kidneys are gonna put urine in it. Its gonna suck for a while, but he should get used to it.
6 weeks later, Buddy will have his transplant. They want to give his bladder 6 weeks to completely heal before we transplant so we dont have a risk of infection there.
I am scared to death and happy at the same time. I dread the surgery days but I also welcome them because it is one more step closer to "normal". I look forward to my already happy baby boy to be even more happy and healthy.
I am praying so hard for Buddy and all of our dialysis baby buddies. It's gonna get worse before it gets better but it will be worth all the struggles. I pray that there won't be extra complications in there. I can't wait for him to have a working kidney in his little body. If I can't wait and I've never met you guys in person, I can only imagine how impatient you must be feeling. Well, I guess I can imagine, LOL. I pray for peace for you as I did for Tara and I and it worked for both of us. Tara gave out to exhaustion and was able to take a nap during Finn's transplant. Buddy is so like Logan in that he doesn't seem to act "sick." We always say Logan had no clue that he was sick. But, he does know now that he is well. Sometimes he is well enough to be a pain in the butt even, LOL.
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